Understanding Rare Chromosome and Gene Disorders

Awareness Day 2022

Thursday June 16th is Rare Chromosome Disorder Awareness Day.

It’s a day to celebrate, educate, shine bright together and reach out to those who need help or might not have heard of chromosome and gene disorders. So many people haven’t heard about chromosome & gene disorders…yet!

We want to celebrate all the unique children and adults and their amazing achievements. Help us shine bright together for all those living with and affected by rare chromosome and gene disorders.

Here’s a few things you can do for #Rarechromoday

Do some baking with Unique’s Big Blue Baking Kit

Cake sales are always a big hit and our Baking Kit is sure to help yours be a huge success…..

Big Blue Bake Sale Kit and Poster

To download details about the Baking Kit, plus a poster to use for your bake sale, just click here.  To give your cake sale and stylish and  totally ‘unique’ feel, we’ve also designed a selection of cupcake flags and cupcake toppers.

Click here for the Cupcake flags (with instructions for use) or Click here for the Cupcake toppers

Click here to order edible rice paper toppers from www.mycupcaketoppers.co.uk/products/unique

Show you care by wearing blue & yellow on June 16th and click here to make a donation

***NEW FOR THIS YEAR: The Unique23 – A New Challenge for Awareness Week

How will you do yours?

Unique23

Here are a few ideas for your ‘Unique23’….

  1. Donate your change: Why not fill up a small jar with your change?
  2. Guess the number of sweets in a jar: fill a jar with sweeties (count them first!) and ask your family, friends or work colleagues to make a donation to guess the number and win the sweets!
  3. Hold a Dress-Down Day/Silly Sock Day/Wear Something colourful (or something odd!) day: A simple way to raise funds at work or school… just donate a small sum to take part.
  4. Hold a Games night – either virtual or in person: play your favourite games with family and friends – something that works just as well on Zoom/Teams etc as it does in-person.
  5. Be a Superhero for the day: Have a party for the kids and get them dressing up as a superhero….or if you have a favourite, you could dress up too!
  6. Gardening/Lawn mowing/odd jobs: Help a friend or neighbour out by offering to mow their lawn or tidy up their garden in return for a donation.
  7. Lucky dip: Seek donations to take part in a lucky dip for small presents provided by your work colleagues.
  8. Sponsored silence: This one might not be so easy for some! Get sponsored to stay silent for a long period of time for charity.
  9. Sponsored ‘No TV’: give up television for an hour/a day or even an hour a day for a week.
  10. Quiz Night: Devise a quiz that’ll challenge your friends and ask for a donation to enter.

TELL TELL TELL! Sharing your experience can be so rewarding for you and your family and helps others to realise they are not alone. Why not use this opportunity to post something on social media to help raise awareness?

Need some help with Facebook, Instagram or Twitter? Just email Arti on arti@rarechromo.org today!

We can only go on supporting families, providing information and raising awareness with your help! If you need some help, please email craig@rarechromo.org ….. he’ll be pleased to hear from you.

Wear that you care!

Our awareness wristbands and discreet pin badges are available from our online shop.

Other ways to get involved could include:
•Snap a photo of your child and share on all your social media accounts using #uniquenotalone #rarechromo #rarechromoday

•Use our new Facebook profile photo frame and banner – details to be released nearer the day!

•Share a video telling people about chromosome disorders, your affected family member and how Unique helps with information, networking and support

If you’re happy to share a snippet of your life with the general public via Unique’s website and social media, please email a photo and few words to Arti at arti@rarechromo.org. Sharing stories in this way really helps to raise awareness of the realities of Unique families.

Martina speaks about her daughter, Lucy, and shares their story about how Unique offers hope to families by showing them that they are never alone.

Whatever you do – have fun! Your contribution, however small you think it is, is absolutely vital.

For more information about Unique, please email info@rarechromo.org