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Thursday June 22nd is Rare Chromosome & Gene Disorder Awareness Day.
It’s a day to celebrate, educate and inform… So many people haven’t heard about chromosome & gene disorders……yet!
We also want to reach out to those who need help or might not have heard of rare chromosome and gene disorders or Unique and we want to celebrate all the unique children and adults and their amazing achievements. Help us shine bright together for all those living with and affected by rare chromosome and gene disorders. Here’s a few things you can do for #Rarechromoday…
During June 2023, in the lead up to awareness day, we’re asking you to take on a special challenge and it’s one for all abilities. Just use the theme 23 for 23! You could push a wheelchair a mile a day for 23 days, turn the TV off for an hour a day for 23 days, run a mile a day, wear blue and yellow, stay silent for 23 minutes a day, whatever you’re able to do. Ask people to sponsor you and when they do, tell them about Unique and rare chromosome disorders.
If you’d like to take part, just email us on email@example.com with the subject Unique23
If you’re on social media, why not update your profile with our new profile pic and cover photo from now and in the lead up to June 22nd (and beyond!)
…..and this one has been designed for use on Instagram or Twitter (from a PC, just right click to Save)
Unique’s Big Blue Baking Kit
Cake sales are always a big hit and our Baking Kit is sure to help yours be a huge success…..
Big Blue Bake Sale Kit and Poster
To download details about the Baking Kit, plus a poster to use for your bake sale, just click here. To give your cake sale and stylish and totally ‘unique’ feel, we’ve also designed a selection of cupcake flags and cupcake toppers.
Show you care by wearing blue & yellow on June 22nd and click here to make a donation
TELL TELL TELL! Sharing your experience can be so rewarding for you and your family and helps others to realise they are not alone. Why not use this opportunity to post something on social media to help raise awareness?
Need some help with Facebook, Instagram or Twitter? Just email Arti on firstname.lastname@example.org today!
We can only go on supporting families, providing information and raising awareness with your help! If you need some help, please email email@example.com ….. he’ll be pleased to hear from you.
Wear that you care!
Our awareness wristbands and discreet pin badges are available from our online shop.
Other ways to get involved could include:
•Snap a photo of your child and share on all your social media accounts using #uniquenotalone #rarechromo #rarechromoday
•Share a video telling people about chromosome disorders, your affected family member and how Unique helps with information, networking and support
If you’re happy to share a snippet of your life with the general public via Unique’s website and social media, please email a photo and few words to Craig at firstname.lastname@example.org. Sharing stories in this way really helps to raise awareness of the realities of Unique families.
Whatever you do – have fun! Your contribution, however small you think it is, is absolutely vital.
For more information about Unique, please email email@example.com