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Welcome to Unique!

Unique provides support, information and networking to families affected by rare chromosome and gene disorders.

Our helpline team can help you understand your family member's diagnosis and connect you with others. Why not join us today? Alternatively, have a look around first and contact us when you're ready....

Your story matters

For our next chapter, we’re going back to where it all began… the little red book
We are delighted to invite you to write in our brand-new digital little red book! This is an opportunity for you to share your own personal experience with rare chromosome or gene disorders. With this book we hope to promote understanding and raise awareness by sharing stories that bring us together.

Touch The Sky: our brand new pop song is out now

Our own pop song,"Touch the Sky," has just been released! 🌟

It's a positive, inclusive, uplifting celebration of the rare chromosome & gene disorder community. We hope you love it as much as we do! Share it with friends, family and loved ones.