Understanding Rare Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique in these times of uncertainty will help us to continue to provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder.  Just ask us on info@rarechromo.org Please note that we do not cover mitochondrial, metabolic or autosomal recessive single gene disorders.

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 141 results. Page 1 of 1

Country County No. of Members
England -none- 37
England Avon 123
England Bath & NE Somerset 12
England Bedfordshire 140
England Berkshire 125
England Buckinghamshire 119
England Cambridgeshire 197
England Cheshire 220
England Cleveland 66
England Cornwall 112
England County Durham 113
England Cumbria 77
England Derbyshire 145
England Devon 189
England Dorset 106
England East Riding of Yorkshire 25
England East Sussex 209
England East Yorkshire 59
England Essex 363
England Gloucestershire 94
England Greater Manchester 245
England Hampshire 353
England Herefordshire 22
England Hertfordshire 219
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Kent 415
England Lancashire 323
England Leicestershire 124
England Lincolnshire 157
England London 492
England Merseyside 150
England Middlesex 138
England NE Lincolnshire 13
England Norfolk 162
England North Devon 1
England North Lincolnshire 9
England North Somerset 25
England North Yorkshire 127
England Northamptonshire 130
England Northumberland 42
England Nottinghamshire 189
England Oxfordshire 103
England Rutland 4
England Shropshire 66
England Somerset 124
England South Gloucestershire 24
England South Yorkshire 240
England Staffordshire 158
England Suffolk 147
England Surrey 347
England Tyne & Wear 156
England Warwickshire 99
England West Midlands 295
England West Sussex 164
England West Yorkshire 317
England Wiltshire 133
England Wirral 4
England Worcestershire 57
Northern Ireland -none- 4
Northern Ireland Co. Antrim 100
Northern Ireland Co. Armagh 35
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 71
Northern Ireland Co. Fermanagh 12
Northern Ireland Co. Londonderry 20
Northern Ireland Co. Tyrone 24
Scotland -none- 8
Scotland Aberdeenshire 49
Scotland Angus 16
Scotland Argyll 5
Scotland Argyll & Bute 11
Scotland Arran 1
Scotland Ayrshire 28
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 3
Scotland Dumfries & Galloway 16
Scotland Dumfrieshire 6
Scotland Dunbartonshire 8
Scotland East Ayrshire 4
Scotland East Dunbartonshire 5
Scotland East Lothian 19
Scotland East Renfrewshire 1
Scotland Falkirk 1
Scotland Fife 47
Scotland Grampian 6
Scotland Highland 15
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 2
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 25
Scotland Lothian 22
Scotland Midlothian 26
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 30
Scotland Orkney 1
Scotland Perthshire 7
Scotland Renfrewshire 27
Scotland Ross and Cromarty 1
Scotland Ross-shire 10
Scotland Roxburghshire 8
Scotland Scottish Borders 10
Scotland Selkirkshire 5
Scotland Shetland 6
Scotland Shetland Islands 1
Scotland South Ayrshire 3
Scotland South Lanarkshire 12
Scotland Stirlingshire 35
Scotland Strathclyde 84
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 2
Scotland West Lothian 26
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 9
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 15
Wales Conwy 11
Wales Denbighshire 16
Wales Dyfed 2
Wales Flintshire 11
Wales Glamorgan 5
Wales Gwent 41
Wales Gwynedd 18
Wales Mid Glamorgan 30
Wales Monmouthshire 15
Wales Pembrokeshire 23
Wales Powys 14
Wales Rhondda Cynon Taff 10
Wales Rhondda Valley 1
Wales South Glamorgan 46
Wales Vale of Glamorgan 16
Wales West Glamorgan 33

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 113 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 64
Aruba 1
Australia 1392
Austria 27
Bahrain 1
Belarus 4
Belgium 59
Bermuda 3
Bosnia and Herzegovina 7
Brazil 128
Brunei Darussalam 1
Bulgaria 8
Cambodia 1
Canada 854
Canary Islands 5
Chile 29
China 23
Colombia 27
Costa Rica 1
Croatia 14
Cuba 1
Curacao 1
Cyprus 12
Czech Republic 16
Denmark 73
Dominican Republic 4
Ecuador 4
Egypt 5
Eire 512
Estonia 4
Faroe Islands 1
Fiji 1
Finland 76
France 165
Georgia 3
Germany 245
Ghana 1
Gibraltar 7
Greece 19
Guatemala 5
Guernsey 11
Hong Kong 26
Hungary 8
Iceland 17
India 35
Indonesia 10
Iran 6
Iraq 1
Israel 41
Italy 147
Japan 12
Jersey 10
Jordan 4
Kazakhstan 1
Kenya 2
Korea 1
Kuwait 3
Latvia 5
Lebanon 3
Lithuania 2
Luxembourg 4
Macedonia 1
Malaysia 18
Malta 12
Mexico 27
Moldova 2
Monaco 1
Montenegro 1
Morocco 7
Namibia 1
New Zealand 343
Nigeria 2
North Macedonia 1
Norway 143
Oman 5
Pakistan 4
Peru 5
Philippines 10
Poland 87
Portugal 39
Puerto Rico 8
Qatar 6
Republic of Panama 4
Romania 26
Russia 98
Saudi Arabia 13
Senegal 1
Serbia 5
Singapore 17
Slovakia 8
Slovenia 14
South Africa 114
South Korea 8
Spain 160
Sri Lanka 5
Sweden 122
Switzerland 61
Syria 1
Taiwan 8
Thailand 9
The Netherlands 272
Trinidad & Tobago 3
Turkey 29
U.S.A. 7921
Ukraine 13
United Arab Emirates 27
United Kingdom 10163
Uruguay 5
Venezuela 5
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders