Understanding Rare Chromosome and Gene Disorders

Thank you for being there

It's a challenging time for us all but our team continues to welcome and help huge numbers of families from across the world when they need us most. Please help us give comfort and hope to families affected by rare chromosome & gene disorders.

Just scroll down and click Give a One-Off Donation. Thank you.

How would you like to donate?

How your donations help

Unique is a small charity. We rely on donations and fundraising to provide our services, welcoming and helping over 2,000 new families each year. Our services include:

  • Our Listening Ear helpline, the first point of contact for often-distressed families who have received a diagnosis for their child or adult family member, plus lots of professionals working with and caring for them.
  • Provision of support and information that is often not available elsewhere.
  • Our Information Officers have published more than 300 information guides to specific conditions, going beyond purely medical data to include issues particularly relevant to the condition, including communication, behaviour, education and sleep.
  • An additional resource of almost 30 'Practical' Guides for Families - covering topics that cut across many rare chromosome and gene disorders
  • Events such as family days, study days and conferences, to help families meet others and for families and professionals to learn more about these conditions

With the current very challenging economic situation for us all, our income is under pressure and your donations and fundraising are therefore more crucial than ever.  THANK YOU for your support!