Sarah Wynn, one of Unique’s Information officers is also studying for a MSc in Genetic and Genomic Counselling at Cardiff University and is undertaking a research project looking at parents’ experiences of receiving a variant of uncertain significance (VUS or VOUS) diagnosis for your child. Understanding families’ experiences and perspectives is vital for the development of best practice and ensuring that families receive the best care and support possible.

All answers and comments are confidential and will be stored securely and anonymously. Results from this survey will be used as part of the write up of Sarah Wynn’s MSc dissertation and to inform Unique’s work. A summary of the results from this survey will be available to all those who took part.

For more details, please see attached poster or visit: