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Unique families.... Genomics England would like your help in developing its Newborn Genomes Programme, and in particular, invite you to some workshops to inform the drafting of principles that will guide the programme. Please click below to read on!
Genomics England is working to develop a way of keeping in closer contact with the people whose data they look after.
By taking part in a 90-minute informal interview you can help them better understand the experiences of individuals who had a genetic test called WHOLE GENOME SEQUENCING.
Registration will take only a few minutes and there will be some completely optional follow-up sessions, for which you will be offered £100 for your time.
Be quick and sign up today!
Our CEO, Dr. Sarah Wynn, recently attended a meeting with Sajod Javid MP, Secretary of State for Health & Social Care. You can read more here.
Has your child been diagnosed with a genetic change that happened for the first time in them but was not found in you or your partner? If you’re in the UK, you might like to participate in a University of Oxford research study on parents’ views on finding out about how the change happened and whether it might happen again....
Unique's brand new guide to Mental Health & Wellbeing for parents, carers and all those living with rare chromosome disorders has just been published...
Details of a webinar sharing research findings about delivering different news to families.
Please join us in welcoming Anita to the Unique team....