It’s a week to shine a spotlight on all those special people affected by rare chromosome and gene disorders and their families. Running from June 17th-23rd, each day has a theme, such as ‘Telling Tuesday and ‘Warrior Wednesday’.

There are lots of different ways to get involved, from simply sharing our social media posts, to distributing leaflets, to holding a cake sale or doing some other fundraising, every little helps to raise awareness of rare chromosome and gene disorders. Join us!

Click here for more details