When someone has a severe learning disability and complex needs, it can be difficult to know how they are feeling or why they are showing a particular behaviour. Research and clinical experience shows us that when it comes to behaviour and wellbeing, the most important things to consider are: pain and discomfort, sensory sensitivity, anxiety, poor sleep, emotional control, impulsivity, insistence on sameness, and differences in social behaviour.

It is also very important to consider whether behaviours are learned and if the person has difficulties letting others know what they need or how they feel. These things can each cause particular behaviours and affect someone’s quality of life and they are often linked with each other. Making sure that these things are thought about, checked and assessed is the first step to improving wellbeing and behaviour but it can be hard to know where to start. So it is helpful for carers, parents and professional to have a list of things to work through together and keep track of someone’s behaviour and wellbeing. The Be-Well checklist is a tool that does this.

The Be-Well Checklist is currently being updated based on the feedback provided and the final version will be uploaded here when it’s available.

Professor Chris Oliver presented the Be-Well checklist in an online information event hosted by Unique on the 29th November 2020.

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A recording of Chris Oliver’s presentation is below:

Professor Chris Oliver presenting the Be-Well Checklist: Changing behaviour and improving the wellbeing of people with severe intellectual disability and complex needs.

Behaviour Links and Resources from Chris Oliver

From the chat:
Be-well journal articlehttps://authors.elsevier.com/a/1c88o6EIwShwqA      
Feedback Survey for the checklisthttps://www.surveymonkey.co.uk/r/RJKBP8W  
Vagus Nerve Stimulation Could Help Treat Behavior in PWS  www.fpwr.org/blog/study-shows-vagus-nerve-stimulation-could-help-treat-behavior-in-pws
Cerebra Legal Rights Service  www.cerebra.org.uk/get-advice-support/legal-entitlements-problem-solving-project/
From the presentation: 
Findings from high quality research studies in genetic syndromeswww.findresources.co.uk
Cerebra’s Pain guide for parentswww.cerebra.org.uk/download/pain-a-guide-for-parents/
Research papers (freely available research papers – search by name)www.researchgate.net
Assessments, Measures & Manuals (need to create an account but then can download assessments used by Chris Oliver and his team)  www.findresources.co.uk/professionals/login
FLACC pain scalecerebra.org.uk/download/flacc-pain-scale-infographic/
Autistica (includes info on autism and anxietywww.autistica.org.uk
Jacqui Rodgers website (materials for uncertainty)research.ncl.ac.uk/neurodisability/theteam/jacquirodgers/

With thanks to Professor Chris Oliver. Chris Oliver is a Professor of Neurodevelopmental Disorders at the University of Birmingham and director of The Cerebra Centre for Neurodevelopmental Disorders. He trained as a clinical psychologist at Edinburgh University before completing a PhD on self-injurious behaviour in people with intellectual disability at the Institute of Psychiatry, London. His main research interests are behavioural, cognitive and emotional disorders in people with severe intellectual disability, genetic syndromes and autism spectrum conditions.