Take part in research from home!
If you are a parent or caregiver of a child aged 3-14 years old with:
- Sotos syndrome
- Tatton-Brown Rahman syndrome
- 16p11.2 duplication syndrome
- 16p11.2 deletion syndrome
You’re invited to complete a questionnaire investigating the sensory profiles of children with these syndromes.
What is the purpose of the study?
The aim of this research is to investigate the sensory profiles of children with Sotos syndrome, Tatton-Brown Rahman syndrome, 16p11.2 deletion syndrome and 16p11.2 duplication syndrome. A sensory profile is a measure of a child’s response to everyday sensory events. This may relate to hearing, vision, touch, taste or smell, body movement, or how a child feels in certain situations.
To take part or to find out more, please contact Harriet Smith: