Lots of Unique members have to make superhuman efforts just to get through the day and our supporter Leo is no exception. He’s going to climb Mount Everest (virtually of course!). Leo’s mum Katie sent us this:
My name is Leo. I am 8 and a half. 2 and a half years ago I was diagnosed with KBG Syndrome, a very rare chromosome disorder currently effecting just under 600 people worldwide. KBG syndrome causes learning and developmental delays and disabilities. For me it means I have autism, ADHD, sensory processing disorder, hearing and sight problems and developmental delays. But people with KBG are amazing, we are great at so many different things! I am a brilliant drummer and have a brilliant memory.
Unique is the charity researching KBG and lots of other very rare chromosome disorders and offering support to all the families effected. Through Unique we have found others going along the same journey as us and feel as though we have discovered our extended family. So to raise money for this wonderful charity I am going to walk, run, jump, spin and twirl my way to the top of Mount Everest!
Leo’s Mum, Katie, says, “Leo is very excited about getting a medal when he reaches the virtual summit of the mountain! Unique have been such a help to us. The KBG awareness day in 2019 was amazing and we are very excited to be able to do something to help a little bit.”
A massive thank you to Leo and Katie and GOOD LUCK!!
You can support Leo at: https://www.justgiving.com/fundraising/katie-fox16