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New research opportunity for adult siblings of those with chromosome or gene disorders.
Calling parents & carers of children with 3q29 deletion or duplication
An opportunity to take part in some research aimed at helping genetic counsellors understand views of families and develop their practice.
Unique families.... Genomics England would like your help in developing its Newborn Genomes Programme, and in particular, invite you to some workshops to inform the drafting of principles that will guide the programme. Please click below to read on!
Genomics England is working to develop a way of keeping in closer contact with the people whose data they look after.
By taking part in a 90-minute informal interview you can help them better understand the experiences of individuals who had a genetic test called WHOLE GENOME SEQUENCING.
Registration will take only a few minutes and there will be some completely optional follow-up sessions, for which you will be offered £100 for your time.
Be quick and sign up today!