Vacancy – Part-Time Information Officer (Family Support)

Unique provides a specialist information and support service to families affected by rare chromosome disorders, copy number variants and autosomal dominant single gene disorders (RCDs) associated with developmental disorders and to the professionals working with them. We now seek an additional Information Officer.

Working part-time, principally with the CEO and other members of our frontline team, you will help provide support and information to families living with RCDs, cover for the CEO as the first contact point for new families and be a contact for existing members and professionals. In responding to queries you will use information from our comprehensive database, as well as researching various published materials.

Highly motivated and flexible, you will have an excellent understanding of human genetics and genomics and medical terminology. Good IT and excellent communication skills are essential. Experience of counselling families with genetic/genomic disorders is highly desirable, as is empathy with, and a good understanding of, the issues Unique’s families face.

This is a part-time position, a minimum of 14 hours per week throughout the calendar year during normal office hours, with a mixture of home and office-based working. Hours to be worked across a minimum of 2 days per week, with the possibility of additional working hours/days, according to the successful candidate’s availability and the charity’s workload. You may occasionally be required to attend external meetings outside your normal working hours as appropriate and when safe to do so as prevailing Covid guidelines permit. Following a successful probationary period, there may be the opportunity to participate in other Unique activities and projects. Candidates wishing to job-share would be considered.

Unique has members globally but is based in Oxted, Surrey, UK. Please note, however, that applicants must be resident in the UK.

If you have any questions or would like any further information, including a job description or person spec, please contact Craig Mitchell, Chief Operating Officer, on email at or on 01883-723306 or visit

Applications in writing, with full CV, on email to to Craig Mitchell, Chief Operating Officer, Unique, by 5pm on Monday, June 7th 2021. Interviews will take place during June/July 2021.