Thank you everyone who came to our conference, we are excited to share each presentation and a few of the resources from the day. We want all our members to benefit from the high quality information we gained from each of the speakers and presenters.
But before we get into the resources, we invite you to experience the day in our short film from the event. We can’t stop watching it, and we hope you love it too.
For our members who weren’t able to join us in-person, we recently shared an email with all our recordings from the event to your inbox. Please reach out if you didn’t get the email and we’d be happy to share. So, grab a snack and listen to our presentations from the comfort of your own home.
Thank you to all our speakers who did a fantastic job sharing their wisdom and resources with our families, and to everyone who came along.
A couple of our wonderful speakers have given us permission to share their presentations more widely, whoch you can also check out below:
Planning for the future: Wills, trusts and decision making with Philip Warford, Renaissance Legal
Genetics 101 with the Unique team supported by clinical geneticists and genetic counsellors
Post-transition support for your people with learning disabilities and their families: preparing for adulthood with Angela Hassiotis, Professor of Intellectual Disability in the Division of Psychiatry at UCL
Other talks that can be found via our email are:
- Speech and Language with Rosie Ashworth, Evelina London Children’s Hospital
- Behaviour that challenges with Hayley Crawford, Associate Professor, Warwick Medical School
- Carers wellbeing: Living with a rare chromosome and gene disorder with Dr Stephanie Yin, Rareminds
Resources
Supporting siblings with Sibs charity
Sibs Charity have provided us with lots of useful resources to help you learn more about how to support sibblins of children with a rare chromosome or gene disorder. Click the links to learn more.
very much for hosting the conference last week, I hope your parents found Clares session useful. Please find attached the follow up handout for everyone and if you could also pass our email address over info@sibs.org.uk, parents can contact us directly if they need to.
Here are some other links which may be useful.
Sibs booklist is here:-
Sibs Talk resources for schools :-
Sibling group leader training information:-
