Did you know Unique has ambassador’s around the world who run regular meet ups in their regional areas.
One of these groups is in Liverpool. Suvi helps run the group and would like to spread the word about the next meeting later in the year:
“I have recently become an Ambassador for Unique in Liverpool and held our first coffee morning at the end of August 2025. Our son Jacob is 7 and has a rare genetic disorder, UBE2A deficiency syndrome. My aim is to be able to offer one another advice and support as parents / carers and to establish an opportunity to meet up. I work full time as well as caring for my son. I’ve managed to find a venue to host a small coffee morning (for up to 20 people) on 22nd December 2025 from 10:00am-12:00pm for parents of children aged under 10. I am looking to run the event twice a year to meet other parents in a similar situation to myself. It would be nice to get to know other families locally.“
If you would like further information on the event you can join their dedicated WhatsApp group. Get in touch us here at Unique and we’ll share the link.
We’re also very keen to get more groups up and running. If you’d like to become a Unique ambassador to run a one-off or regular meeting in your local area, we’d love to hear from you.
help@rarechromo.org
