Understanding Rare Chromosome and Gene Disorders

Mental health & wellbeing

Living with, or caring for a loved one with a rare chromosome or gene disorder can sometimes affect our emotional health. It is important to look after your mental health and wellbeing.

UNIQUE HELPLINE

At Unique we have our telephone and email helpline. Whatever your question, or if you just want to talk to someone, please do not hesitate to pick up the phone or send us an email.

T: +44 (0) 1883 723356 (Monday to Friday 9am – 5pm BST/GMT)
E: info@rarechromo.org

FACEBOOK SUPPORT GROUPS

Unique has a private and hidden Facebook group and several country-specific private & hidden Facebook groups for registered members of Unique. If you’re a member of Unique and not on any of our Facebook groups, please email our Family Support Officer, Marion Mitchell at marion@rarechromo.org.

Here are links to other sources of support in the UK:

NHS SUPPORT

If you would like to talk to somebody about mental health or wellbeing, in the first instance you should talk to your GP. You can also read information about accessing mental health services and support at:

www.nhs.uk/using-the-nhs/nhs-services/mental-health-services

You can also refer yourself directly to a psychological therapies service (IAPT) without seeing your GP as long as you are registered with a GP at:

www.nhs.uk/service-search/find-a-psychological-therapies-service

These services offer therapies, such as cognitive behavioural therapy (CBT), for common problems including stress and anxiety.

PRIVATE COUNSELLORS AND THERAPISTS

British Association for Counselling and Psychotherapy approved therapists can be found at the following link: www.bacp.co.uk/search/Therapists

GENERAL SUPPORT

There are also many organisations that you can turn to for support;

Mind

https://www.mind.org.uk/

Young Minds

https://youngminds.org.uk/

Samaritans

If you need to talk through your feelings call 08457 90 90 90

(open 24 hours a day, charges apply) or email jo@samaritans.org

Carers UK

Free helpline 0808 808 7777

www.carersuk.org/

UNIQUE’S PRACTICAL SUPPORT GUIDES

You may also find Unique’s practical support guides helpful, in particular, our Carers Wellbeing and Self-Isolation guides:

www.rarechromo.org/practical-guides-for-families/

Where can I get help and support when the Unique team is not available?

IF THERE IS AN IMMEDIATE RISK OF HARM TO YOU OR SOMEONE ELSE:

This is an emergency:

In the UK, CALL 999 OR 112 to get immediate support, 24 hours a day, 365 days a year.

At Unique, we strive do as much as we can to help, as quickly as we can.  However, Unique is not a crisis service and we might not be available in an emergency.  Here are links to other sources of support in the UK if we are not immediately available.

IF THERE IS A CRISIS – NO IMMEDIATE RISK OF HARM BUT STILL AN URGENT NEED FOR SUPPORT

For health advice and support:

CALL 111

For Covid-19 specific advice and support:

CALL 119

FOR EMOTIONAL SUPPORT:

CALL The Samaritans on 116 123 (any time, night or day, throughout the year)

EMAIL The Samaritans: jo@samaritans.org (24hr response time)

More information about The Samaritans here:

https://www.samaritans.org/how-we-can-help/

Text SHOUT to 85258 for immediate support, 24/7. Shout 85258 is a free, confidential, anonymous text support service. You can text from wherever you are in the UK.: https://giveusashout.org/get-help/

MIND have a list of other crisis services here:

https://www.mind.org.uk/information-support/guides-to-support-and-services/crisis-services/helplines-listening-services/