Understanding Rare Chromosome and Gene Disorders
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Noni de Zoete


I am delighted to become involved with Unique. Our grand daughter Maya has a 10q26.1 deletion, and after her diagnosis at one month old, I contacted the charity. Beverly and her team gave our family such comfort and support and I decided to run the London Marathon for them. I have been involved with a charity for the Elderly for many years, and was thrilled to be invited to become a Trustee for Unique. As a grandmother I hope to represent those who watch how their children cope with the challenges and the joy of bringing up these special children.