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Beverly recently retired as CEO of Unique after having been passionately involved with the charity since the birth of her daughter Jenny in 1990, first as a volunteer and since 1999 as a staff member. Before that she was a research biologist with an interest in the biochemistry and genetics of yeast. What a coincidence then that Jenny should be born with a chromosome deletion! Jenny was profoundly disabled and very medically complex; sadly we lost her when she was 21 years old but we are all very proud to have had her in our lives. Beverly’s son Jonathan is a doctor and her husband Trevor was a software specialist before retirement; together, Trevor and Beverly developed and maintained Unique’s members’ database. She was responsible for the day to day running of Unique and development of our services and over many years she responded to queries from new families and professionals and worked tirelessly to raise the profile of rare chromosome disorders and the work of Unique.