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Understanding Rare Chromosome and Gene Disorders
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help@rarechromo.org
Helpline:
+44 (0) 1883 723356

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+44 (0) 1883 723306

Address:
The Stables, Station Road West
Oxted
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RH8 9EE
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Unique @unique_charity ·
18h

The London Landmark Half Marathon is up there as one of the most popular events, so claim your spot quick!

We have 5 places available for the 4th April 2027 on a first-come-first-served basis at £30 for the promise of raising £400 for Unique.

Book now: https://runforcharity.com/event/unique-rare-chromosome-disorder-support-group/london-landmarks-half-marathon

Unique @unique_charity ·
24h

Trying to think how to help us with our 3 BILLION STEPS CHALLENGE?

Most active challenges can be converted to steps, so no matter what you decide to do, you'll help us to reach our goal. Click through the images to get some ideas.

So.. What will you do? https://rarechromo.org/rare-chromo-day-2026/

Unique @unique_charity ·
26 May

Meet Aria who lives with #FloatingHarborSyndrome, caused by an alteration in the #SRCAP gene.

'She's such a funny, kind, amazing little girl with a big heart who's loved by everyone she meets!'

You can learn more about the condition in our guide here: https://rarechromo.org/media/singlegeneinfo/Single%20Gene%20Disorder%20Guides/Floating-Harbor%20syndrome%20FTNW.pdf

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Site editor Sarah Wynn PhD
Rare Chromosome Disorder Support Group. Registered charity no. 1110661
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Clinical photography provided by St George's University Hospital
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