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Unique @unique_charity ·
14h

'14 weeks ago I was blessed with the arrival of my beautiful Halli-Ann. 6 weeks later however our world was shattered when Halli was diagnosed with a rare gene disorder: Bainbridge-Ropers syndrome'

Read Halli's story by her mum, Jordan by clicking through the photos

3

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Ataxia and Me CIO 1184030 @ataxia_and_me ·
30 Apr

Last Week we attended the #GenomicsShowcase2026 !

Thank you very much to Emily and @Unique_charity for chatting to us! 💙

#Ataxia #RareDisease #Awareness #StrongerTogether

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Ataxia and Me CIO 1184030 @ataxia_and_me ·
1 May

Diary date
16th May Morriston Hospital #Medical Students and #doctors
#RareDisease Study Day
We will have a stand along side our friends
@Unique_charity
@ataxia_and_me
@step_by_step
@NEWSFORTOFS
@morgans_Army
@medics4rare
@walesgenepark

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Copyright © 2026 Unique
Site editor Sarah Wynn PhD
Rare Chromosome Disorder Support Group. Registered charity no. 1110661
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Clinical photography provided by St George's University Hospital
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