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Understanding Rare Chromosome and Gene Disorders
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help@rarechromo.org
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+44 (0) 1883 723356

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+44 (0) 1883 723306

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Unique @unique_charity ·
16 Jun

We've had lots of questions regarding our step challenge, so we've compiled a few of the most common for you. Take a look in the photos.

In short; you don't need a step counter, you're not too late to take part and we're open to ANY fundraiser you'd like to do 😃
#RareChromoDay

4

Unique @unique_charity ·
16 Jun

The Sleep Detectives are recruiting young people between the ages 6 and 21 who have a genetic diagnosis of: 22q11.2, 1q21.1 and 16p11.2 duplication or deletion.

Learn about the study here: https://sleepdetectives.blogs.bristol.ac.uk/
Or contact sleepdetectives@cardiff.ac.uk to get involved

Unique @unique_charity ·
15 Jun

We'll be doing our next step count total shortly! If you've been taking on our challenge, get your latest step count in to us so we can include in next weeks total.

👣 rcd@rarechromo.org

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Copyright © 2026 Unique
Site editor Sarah Wynn PhD
Rare Chromosome Disorder Support Group. Registered charity no. 1110661
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Clinical photography provided by St George's University Hospital
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