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Understanding Rare Chromosome and Gene Disorders
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Unique

@unique_charity ·
14 Aug

Our latest paper outlines the nature of support and information services provided by Unique and highlights key insights gleaned from direct engagement with our members.

Take a look here: https://journals.sagepub.com/doi/10.1177/22146490261471688

Unique

@unique_charity ·
13 Aug

Are you a parent or guardian of a child (0-17 years) with a life-limiting condition in England?

Researchers at King’s College London want to improve social care support for children with life-limiting conditions and their families. Take part: kentownresearchstudy@kcl.ac.uk

Unique

@unique_charity ·
12 Aug

We are delighted to share our new guide on #QRICH1RelatedSyndrome (#VerveriBradySyndrome). 👉https://ow.ly/lKfG50ZwSRK

This guide was produced with the kind help of Dr Angela F Brady and Unique members

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