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Understanding Rare Chromosome and Gene Disorders
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Unique

@unique_charity ·
16 Sep

The Unique team have pulled out their denim for @jeansforgenes Week to help change the lives of the 1 in 25 Children in the UK affected by a genetic condition.

Jeans for Genes UK are an incredible organisation so get on your jeans and help spread the word!

Unique

@unique_charity ·
15 Sep

“I received the results when I was 8 months pregnant.”

Sammy discovered she had an inherited a rare #genetic condition, now she's thinking about what it could mean for her daughter’s future.

Read her story here: https://rarechromo.org/little-red-book/ and share yours below.

Unique

@unique_charity ·
11 Sep

We have a new guide on Houge-Janssens syndrome!
👀Take a look: https://rarechromo.org/media/singlegeneinfo/Single%20Gene%20Disorder%20Guides/Houge-Janssenssyndrome.pdf

Houge-Janssens syndrome is a rare genetic condition associated with neurodevelopmental delay, language delay, behavioural challenges, hypotonia, epilepsy and sleep difficulties.

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Site editor Sarah Wynn PhD
Rare Chromosome Disorder Support Group. Registered charity no. 1110661
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