Name/pseudonym
I want to remain anonymous

I am:
-- Choose a option --Living with chromosome or gene disorderCaring for someone with a chromosome or gene disorderOther

Diagnosis/which chromosome or gene disorder

Age of person living with chromosome or gene disorder

Country—Please choose an option—AfghanistanAlbaniaAlgeriaAndorraAngolaAntigua &s DepsArgentinaArmeniaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBosnia HerzegovinaBotswanaBrazilBruneiBulgariaBurkinaBurundiCambodiaCameroonCanadaCape VerdeCentral African RepChadChileChinaColombiaComorosCongoCongo (Democratic Rep)Costa RicaCroatiaCubaCyprusCzech RepublicDenmarkDjiboutiDominicaDominican RepublicEast TimorEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFijiFinlandFranceGabonGambiaGeorgiaGermanyGhanaGreeceGrenadaGuatemalaGuineaGuinea-BissauGuyanaHaitiHondurasHungaryIcelandIndiaIndonesiaIranIraqIreland (Republic)IsraelItalyIvory CoastJamaicaJapanJordanKazakhstanKenyaKiribatiKorea NorthKorea SouthKosovoKuwaitKyrgyzstanLaosLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMauritaniaMauritiusMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew ZealandNicaraguaNigerNigeriaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPolandPortugalQatarRomaniaRussian FederationRwandaSt Kitts & NevisSt LuciaSaint Vincent & the GrenadinesSamoaSan MarinoSao Tome & PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth SudanSpainSri LankaSudanSurinameSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTogoTongaTrinidad & TobagoTunisiaTurkeyTurkmenistanTuvaluUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVatican CityVenezuelaVietnamYemenZambiaZimbabwe

Email

Question to answer Please choose one of the questions below and tell your story in no more than 300 words. We’d love to hear from everyone from all over the world, so please feel free to leave your story in any language you prefer! If you are a parent/carer or someone who has a rare chromosome or gene disorder, please:
—Please choose an option—Tell us about your journey to diagnosis (for your child or yourself)Tell us about you/your child’s school life. Did you/they experience inclusion in a mainstream school, or did you/they attend a specialist school?Tell us about your/their life as an adult e.g. getting a jobDid you meet another person/family through Unique? Tell us about your experience of connecting with others.Tell us what receiving a diagnosis meant for you/your familyTell us how Unique has made a difference to you

Your story

Image Please upload a photo of yourself/your child to support your entry

Which Unique services do you find the most useful? HelplineRegular magazine / e-newslettersInformation hubMatching serviceWebsiteProviding a voice for those affected by rare chromosome and gene disordersBringing people together

GDPR / data protection I agree to Unique using on social media, in print and digital versions the story and image(s) supplied. I understand the story and image(s) will be accessible to the public from Unique’s social channels and website. Unique will retain copyright of the image(s) as part of the campaign. I understand this will be freely, publicly available for download from Unique’s social media or website and may be disseminated via other channels (e.g. Unique’s social media) and potentially also shared by third parties. The child’s name will not be published if the anonymous tick box has been selected.

I have permission to share this story and I consent to Unique publishing it