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...Please use the link above to view our online accounts for the financial year ending 31 March 2023. The report contains details on how Unique is run and how and...
READ MORE >...our chosen online fundraising partners such as Virgin Money Giving and Justgiving, who will collect your personal information when you set up an online fundraising page to collect sponsorship. We...
READ MORE >These Terms and Conditions apply to everyone using the Unique Members Area including social networks such as Facebook and Twitter. Unique believes that online social networks, chat rooms, message boards,...
READ MORE >...on Contact’s website: COVID vaccination: Your Questions Answered page. Unpaid carers who get Carer’s Allowance are now able to book a Covid vaccine online in the NHS portal: https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-vaccination/book-coronavirus-vaccination/ or by calling...
READ MORE >...few. We have seen professionals offering telehealth appointments via phone calls and/or video chats and schools offering online tutorials. A lot of these adaptations were not provided to us prior...
READ MORE >...craig@rarechromo.org ….. he’ll be pleased to hear from you. Wear that you care! Our awareness wristbands and discreet pin badges are available from our online shop. Click here or visit...
READ MORE >...omit any zeroes (0) at the start of the number. Choose your own online name and password. Not yet a registered Unique family member? Just go to the Become A...
READ MORE >...the USA. https://justlikeyoudolls.com/dolls with cochlear implants, etc US based Online shops for switch adapted toys Inclusive Technology inclusive.co.uk/hardware/switch-adapted-toys Liberator liberator.co.uk/products/learning-and-inclusion-aids/switch-adapted-toys Other items/useful websites Living made easy livingmadeeasy.org.uk/children/play-%26-leisure-31470845 1309177 The play...
READ MORE >A new patient interactive tool that allows people with rare diseases to better understand their risk of Covid19 has now been released. It is the result of a collaboration between...
READ MORE >...deciding what principles should be used to choose conditions that will make up the initial list that babies enrolling in the pilot will be screened for. Online Workshops GEL are...
READ MORE >...The online guides made by the team at Unique are not only helpful to the families affected by rare genetic conditions, but they are also incredibly helpful to people working...
READ MORE >...the question parents most often ask when their child has a genetic condition; “So what does this mean for my child?” What is involved? Parents complete an online questionnaire (or...
READ MORE >Researchers at Queen’s University Belfast and University of Aberdeen are conducting an online international survey to gain an understanding of the impact COVID-19 is having on people with a rare...
READ MORE >...online and I can arrange the interviews at a time convenient to you. The interviews would be recorded so that I can analyse the data and draw out any relevant...
READ MORE >... What is involved with taking part? We will ask the parent to complete an online questionnaire about the child(ren) We will also do an interview with the parent about...
READ MORE >...your family can still participate in the study. What is involved with taking part? We will ask the parent to complete an online questionnaire about the child(ren) We will also...
READ MORE >...37.8 °C), seek clinical advice using the NHS 111 online coronavirus service (https://111.nhs.uk/covid-19/). If you do not have access to the internet, call NHS 111. Do this as soon as...
READ MORE >...Be-Well checklist in an online information event hosted by Unique on the 29th November 2020. Instead of charging for access to this presentation , we are asking people to support...
READ MORE >...the end of your participation, summarising our observations of your child. You will also see our colleagues at UCL where you will be asked to complete an online interview and...
READ MORE >...Carer’s Allowance are now able to book a Covid vaccine online in the NHS portal: https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-vaccination/book-coronavirus-vaccination/ or by calling 119. Further useful information can be found on the following pages:...
READ MORE >...activities, and answer some questions from us. We will also invite you to fill out some online surveys. We would also like to take a blood sample from everyone who...
READ MORE >...to their affected brother or sister Able to take part in an interview (online, phone or face-to-face) and provide consent for themselves Please pass on the information to anyone in...
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