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Understanding Rare Chromosome and Gene Disorders
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Unique @unique_charity ·
22h

A HUGE thank you to Parker J, who donated a portion of their jewelry sales to Unique, raising a whopping $2,500 to support families affected by rare chromosome and gene disorders.

Learn about their business, inspired by the founder's son, Jaxon: https://parkerj-jewelry.com/pages/our-story

Unique @unique_charity ·
3 Mar

Today, on the 3rd of March, Unique are excited to be preparing to create a new guide on TRIO, keep your eyes out for the announcement soon.

For anyone affected by TRIO, you an join the Facebook group here: https://www.facebook.com/groups/245216896054089/

Or join Unique here: https://rarechromo.org/join-us/

Unique @unique_charity ·
2 Mar

When have you felt that there has been a lack of support for you and your family in regards to living with a rare chromosome or #gene disorder?

watch our video to find out what our families said 👇
#GeneDisorder #LackOfSupport #diagnosis

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Site editor Sarah Wynn PhD
Rare Chromosome Disorder Support Group. Registered charity no. 1110661
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Clinical photography provided by St George's University Hospital
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