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Understanding Rare Chromosome and Gene Disorders
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help@rarechromo.org
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+44 (0) 1883 723356

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+44 (0) 1883 723306

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Unique

@unique_charity ·
12h

Join #TeamUnique at the Royal Parks Half Marathon next month.

Claim a place by emailing matt@rarechromo.org. With the deadline to register less than a week away we'll reduce the fundraising target for the event. So now's the perfect opportunity to try out the popular event.

Unique

@unique_charity ·
24 Aug

Thank you, Kimie for raising £440 by taking on the Manchester 10k earlier this year - in the coolest outfit at the event!

Kimie has been a huge support over the years, helping us to continue supporting families around the world affected by rare chromosome and gene disorders.

Unique

@unique_charity ·
22 Aug

It’s #SATB2-Associated Syndrome (SAS) Awareness Day!
Our guide is designed to help families and healthcare professionals looking after people with SAS. It contains information about the cause, how it can affect people and how to manage this condition.

https://rarechromo.org/media/information/Chromosome%20%202/SATB2%20syndrome%20FTNW.pdf

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Site editor Sarah Wynn PhD
Rare Chromosome Disorder Support Group. Registered charity no. 1110661
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Clinical photography provided by St George's University Hospital
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