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Understanding Rare Chromosome and Gene Disorders
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help@rarechromo.org
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Unique @unique_charity ·
14 Feb

This #ValentinesDay, we want to send love to all 300 million people living around the world with a rare condition!

With two weeks to go until #RareDiseaseDay we want to raise awareness of the importance of high quality care, information and support for our global community.

Unique @unique_charity ·
13 Feb

Between 2024-2025 the Unique team were involved in 13 academic papers, covering topics like benefits, harms and costs of genomic newborn screening, promoting timely and equitable access to rare disease genomic testing and more! We're always looking for ways to raise awareness!

Unique @unique_charity ·
12 Feb

Did you get your Royal Park's Half Marathon 2026 ballot email today?

No matter the result you may still be able to claim a spot and fundraise for Unique. Get in touch and we'll see what we can do - matt@rarechromo.org

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Site editor Sarah Wynn PhD
Rare Chromosome Disorder Support Group. Registered charity no. 1110661
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