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...door/Unique Shielding Poster- French TranslationDownload Downloadable warning poster for your front door/Unique Shielding Poster- Spanish TranslationDownload New general advice regarding Coronavirus (COVID-19) for patients with rare genetic disorders 14th April...
READ MORE >...now and in the lead up to June 22nd (and beyond!) …..and this one has been designed for use on Instagram or Twitter (from a PC, just right click to...
READ MORE >...charity. Annual Report and Accounts 2021 (Registered Charity 1110661, Company Number 5460413) Please use the link above to view our online accounts for the financial year ending 31 March 2021....
READ MORE >...Facebook from 14th June 2020) and banner. Unique’s Funday Friday Facebook Banner Unique’s Funday Friday Facebook profile photo frame – available on Facebook from 14th June. Unique’s Funday Friday Instagram...
READ MORE >Unique’s former Chief Executive Officer Beverly Searle BSc(Hons) PhD CBiol MRSB In August 2021, Beverly retired as CEO of Unique after more than 30 years of service to the charity....
READ MORE >...and membership stood at just 1192 families. Beverly went on to lead the charity as Chief Executive Officer for many years, until her retirement in August 2021. Please click here...
READ MORE >24th February 2021 Unpaid carers are now being invited for their Covid vaccinations as part of priority group 6. It is advised that parents request their GP to mark their...
READ MORE >...in writing, with full CV, on email to craig@rarechromo.org to Craig Mitchell, Chief Operating Officer, Unique, by 5pm on Monday, June 7th 2021. Interviews will take place during June/July 2021....
READ MORE >...will reopen on the 4th January 2021. During this period, you may find the information on our website useful: www.rarechromo.org. We will still have some great content going out across...
READ MORE >Unique is happy to share the new UK Rare Diseases Framework that was published on Saturday (9th January 2021). Many Unique members, alongside other members of the rare disease community,...
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