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Gift ideas and useful websites

...we’ll send them out to you. If you’re outside the UK, please email craig@rarechromo.org for costs including shipping. Dream pad integratedlistening.com/products/dreampad/Dreampad™ and Dreampad Mini™ The Dreampad™ and Dreampad Mini™delivers music...

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IMAGINE ID: New Participants Urgently Needed

IMAGINE ID is collecting information about children and young adults with a genetic diagnosis related to learning disabilities. The study hopes to recruit 5,000 families worldwide and wants to answer...

Rare Chromosome Disorder Awareness Day - Quiz for Professionals

...support Unique. To participate, follow the instructions below: Visit Flora’s Just Giving page and make a donation: https://www.justgiving.com/fundraising/RareChromoQuizForPros Complete the quiz below and email your answers to Flora at Flora.joseph@nhs.net – if you...

The Be-Well Checklist: Helping parents, carers and professionals to change the behaviour and improve the wellbeing of people with severe learning disability and complex needs.

...the presentation: Findings from high quality research studies in genetic syndromes www.findresources.co.uk Cerebra’s Pain guide for parents www.cerebra.org.uk/download/pain-a-guide-for-parents/ Research papers (freely available research papers – search by name) www.researchgate.net...

Discussion groups to understand community attitudes to research on rare genetic disorders in British Pakistanis

...having a child with a rare genetic disorder. How will this help? We hope that the research we are proposing will enable families to receive more accurate advice about their...