Keeping you informed

To read and download any of our practical guides for families, including our brand new Self-Isolation Resources Guide, click View below. If you would like to see a new topic added to this range of guides, please let us know by emailing marion@rarechromo.org with your ideas. To support our work in this area to help us produce more resources for families, please click here.

Before downloading any of our guides, we ask you to please read and adhere to our Disclaimer and Copyright Notice.

(Page last updated 30th March 2020)

Practical Guides for Families

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English

A Clinical Genetics Appointment	View
Adoption Guide	View
After Diagnosis, What Next? Non-UK edition	View
After Diagnosis, What Next? UK edition	View
Bereavement and loss	View
Carers Wellbeing	View
Challenging Behaviour	View
Communication	View
Education	View
Feeding	View
Further Education, Training And Work	View
Grants And Funding	View
Hearing loss	View
Holidays Guide	View
How to get legal help and advocacy	View
Looking After Your Childs Teeth	View
Mental Health and Wellbeing	View
Planning Your Next Child	View
Prenatal genetic testing and diagnosis	View
Puberty	View
Self-isolation guide to helpful resources	View
Sleep	View
Sports Leisure Days Out	View
Supporting Siblings of Children with a Rare Genetic Condition	View
Teeth Common Concerns	View
Therapies	View
Toilet Training And Continence	View
Transition (from child to adult services)	View
Travel Insurance	View
Uniquely different	View
Young Carers	View

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