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How To Join Us As a Member Family or Individual

Membership of Unique is free for families and individuals affected by rare chromosome disorders but donations are very gratefully received to help us continue our work. For membership please give us:

  • your full name
  • your complete home postal address with post code or zip code and the country you live in
  • your email address
  • your telephone number with area code (and country code if you live outside the United Kingdom)
  • your explicit consent for us to register your details on our confidential registry/database
  • if your affected family member is an adult and has the capacity to give consent, then please make sure to provide us with his or her consent to add his or her details to your family membership on our registry/database

Please make sure that you give these details to us accurately so that we can get back to you. We aim to respond within 48 hours of receiving your message. If you have not heard from us in that time, please first check in your spam or junk folder to see if our reply has gone there. If you do not hear from us within a week of sending your message, then try contacting us again because we will not have received your message. Sometimes different internet service providers are incompatible and your email messages to us will be bounced back to you. If this happens, please try again and if that does not solve the problem, please telephone us or write to us instead.

When you do contact us for membership, please also give us details of your own and/or your child's rare chromosome disorder, if available including the karyotype with any breakpoint numbers or the results of any analyses such as array CGH with breakpoint numbers, base pair coordinates and human genome build. If you do not know your own or your child's karyotype or array CGH results then you can ask your doctor or geneticist. If possible, please also let us have copies of the original genetics lab reports explaining the results. If you are not sure what a karyotype or array CGH are then please read our Little Yellow Book for an explanation.

Please email, post or telephone your details to:
Beverly Searle PhD
Unique Chief Executive Officer
The Stables,
Station Road West,
RH8 9EE,

E-mail: or

Tel: +44 (0)1883 723356